"For the Equal Opportunity for people with rare diseases"
A year comes the most awaited day for everyone. The day where hope for families with rare diseases is real ity. The day where we ask the world mobilize and fair treatment for people with rare diseases. another year, whole of Spain will join the fight against rare diseases, against the consequences and against anything that involves suffering one of these serious diseases affecting 3 million people ... Another year arrives ... The World Day of Rare Diseases to be celebrating over 50 countries on 28 February.
The message this year is a joint message and globally. We to demand equal opportunities for people with rare diseases.
The aim is to fight for families with these diseases to be treated fairly regardless of the rarity of this disease. For this reason, in addition to raising awareness of rare diseases, since ERDF want to draw attention to the great inequity situations experienced by families.
Specifically, since we ERDF equity, primarily based on 3 principles:
- Equity for patients in health and social care
- Equity in their basic social rights: health, education, employment and housing
- Equity in treatments, therapies and treatments necessary for the approach of the disease.
around this message, and under these ideas, we will focus our campaign for World of Rare Diseases. From this ERDF new website and through special bulletins that we send we will inform you of all the news and all the news. For this reason, we ask that you be aware of all the information that we are going to be distributed and should follow closely the latest developments of the day in Spain, Europe and the world.
Text taken from the website of ERDF